Friday, February 10, 2012

not alone

as i held lily at the oncology clinic, her nurse, annie, mentioned to me that there is a brain tumor event in town that i might be interested in going to with the family.  she pointed to the posted flyer and started talking about bouncy houses,  activities for the children,  among other things.  its a walk a thon by students supporting brain tumor research (www.ssbtr.org)

out of nowhere, it struck me... my daughter has a brain tumor, a brain tumor.  obviously this is something i have known for awhile.  yet at times, it is like i am hearing it for the first time.  i am swept over by emotions.  and this was at the clinic.  as i was undressing her for the nurse to access her port to administer chemo.  how is it that i felt so shocked?

someday, i know i will look back and wonder how i did it.  i will realize how stressed and overwhelmed i really was.  but now in the midst of things, i must be oblivious to the obvious.  am i walking around in a daze?  i don't have an answer to that. maybe.  so when the women in my church group offer their help, i take it.  when neighbors say to call anytime, i will.  normally i am one to give, but for now i will accept what is being given to me.  i will let it warm and calm my heart.  i will know that i am not alone.



6 comments:

  1. she is so beautiful. i can't imagine the range of emotions that you are going through every single day. you and your family continue to be in my thoughts. i have started to do a little sewing project for you, if that wouldn't be too weird. maybe just something to brighten your day a little.

    you are not along. you have complete strangers all over the world that are wishing only the best thoughts for you and yours. marci xxx

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  2. definitely not alone. xoxoxoxoxox

    she looks so so cute in these photos.

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  3. You are far from alone honey....we are all right there with you. It is hard to get one's mind around the fact that this perfect baby girl has something in her head that should not be there. Lily is such an outgoing little babe and always has such a beautiful smile for every single person that touches her life. Her cup is not only always half full but it is always overflowing and reaching out to everyone. You're doing wonderful, it's not always easy to be on the receiving end but you are doing it graciously and appreciatively, you give of yourself and now others want to give of themselves to make things a little easier for you and your loved ones. What you give to others always comes back tenfold. Love Ya, Mom

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  4. You are a very caring and loving person and mother. You will look back and say How was I able to do that? We all have that happen in life. Lily is such a beautiful happy child and it shows in every picture I see of her. Beautiful dress to she is wearing.

    Sending Love from Chicago,

    Erica xoxo

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  5. Hi Heather this is Greg (Lewis). She will be alright. It is her right eye isn't it? Stay positive. I feel for you. I know you are worried. Lilly is going to turn out just perfect.

    I am sorry I will have to try again. I just failed the "prove you are not a robot" test :)))))

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